Everyone’s experience of LHON is different. Read below to find out about the experiences of others who live with the condition. If you wish to share your story of living with LHON please download one of the templates and you can soon be starring on this page and supporting others!
Dan Lost his sight while at University but with support from his twin brother completed his degree and now works in financial services.
Ioannis likes to challenge himself and has not let LHON hold him back from achieving his ambitions.
James is a Manchester United fan with an adventurous desire to travel. He Works as a therapist in the NHS
Steph is an ex fashion designer and now runs a personal development business.
Matt is recently diagnosed and rebuilding his life. He has retained his sales job and enjoys VI football.
Rob has lived with LHON for 24 years and is a family man with a successful professional career.
Warren achieved a degree in history after losing his sight and is a keen participant in VI sports.
Glen retrained after losing his sight and now works as a therapeutic counsellor.