Name: Mark Leverington
Describe your motivation for getting involved with the LHON Society.
My son lost his sight in January 2013 at the age of 22 due to LHON. We felt very isolated at that time and would have appreciated a UK based website and support group.
What are your hopes for the LHON Society?
I hope the charity will provide support to anyone whose life has been affected by LHON while helping the scientific community to find new treatments and ultimately, a cure.
What is your guilty pleasure?
A pint (or two) of real ale.
What three words best describe you?
Determined, (mostly) organised, conscientious