LHON Society

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Welcome to the LHON Society

You are in the right place if you or someone close to you, is affected by Leber’s Hereditary Optic Neuropathy (LHON), or you are a medical professional interested in LHON.

The LHON Society was established to create a home for those in the British Isles affected by and with an interest in, LHON. Our aspiration is that through the LHON Society you have access to:

Please take a look around and let us know your thoughts. We are a new and growing organisation and would love you to  join us 

2017 LHON society conference, Saturday 23rd September

click here for more information

click here to register

GenSight LHON Gene Therapy Clinical Trials

click here for information